今日のハイライトは、下に書いた若年性の患者さんからの電話!!!!私も少しだけ話したんだけど、とても前向きな優しそうな声だった。Mr.Pakipaki、最初は緊張していたみたいだけど、話ができてよかったらしい。今度、ミュンヘンまで会いに行きたいと思う。
やっぱりいいよね、同じ境遇の人と話をするって。初めて話すのにず~と昔からの知り合いのような気になるから不思議。
Mr.Pakipaki finally had a chance to talk to someone around his age who is facing the same challenge. Our new friend is "Herr Pakipaki." Mr.Pakipaki seemed a bit nervous about talking with his new friend on the phone first, simply because he has never done this before. But after hanging up, he told me that it was really nice talking to Herr Pakipaki. Mr.Pakipaki even suggested that we should go down to Muenchen to see him sometime later. I love Muenchen!!! I hope Herr Pakipaki is interested in seeing us, though...
It is not fortunate to have this disease, but it is definitely fortunate to find someone with whom we can share our experiences. I thought it was very nice of Herr Pakipaki to give us a call. He was very friendly, sounded very very positive, and his phone call definitely made us feel very positive! Oh! It is also good for me that Herr Pakipkai can speak English! Danke, danke, danke, Herr Pakipaki!!! It was a goooooood day!![](https://blogimg.goo.ne.jp/img_emoji/usagi.gif)
![](https://blogimg.goo.ne.jp/img_emoji/usagi.gif)
![](https://blogimg.goo.ne.jp/img_emoji/usagi.gif)
やっぱりいいよね、同じ境遇の人と話をするって。初めて話すのにず~と昔からの知り合いのような気になるから不思議。
Mr.Pakipaki finally had a chance to talk to someone around his age who is facing the same challenge. Our new friend is "Herr Pakipaki." Mr.Pakipaki seemed a bit nervous about talking with his new friend on the phone first, simply because he has never done this before. But after hanging up, he told me that it was really nice talking to Herr Pakipaki. Mr.Pakipaki even suggested that we should go down to Muenchen to see him sometime later. I love Muenchen!!! I hope Herr Pakipaki is interested in seeing us, though...
It is not fortunate to have this disease, but it is definitely fortunate to find someone with whom we can share our experiences. I thought it was very nice of Herr Pakipaki to give us a call. He was very friendly, sounded very very positive, and his phone call definitely made us feel very positive! Oh! It is also good for me that Herr Pakipkai can speak English! Danke, danke, danke, Herr Pakipaki!!! It was a goooooood day!
![](https://blogimg.goo.ne.jp/img_emoji/usagi.gif)
![](https://blogimg.goo.ne.jp/img_emoji/usagi.gif)
![](https://blogimg.goo.ne.jp/img_emoji/usagi.gif)