#English follows Japanese
妻の5/22のFacebook投稿
前回（ダウン症の良いところ（妻の日記））に続き、心が動いた。
以前の投稿（ダウン症児を育てる - Raise a Down Syndrome Child -）にも書いた通り、我々夫婦はいい意味でも悪い意味でも、楽観的でポジティブだと思う。
厳しい状況というのは、それを乗り越えたときのプラス面を考えると、とてもありがたいことだと思っていたし、それは今でも変わっていない。
可哀想とは全く逆で、むしろ楽しい、嬉しいこと。人は制限を与えられると創造的になる。
ここ（本文より抜粋）↓もグッときた。
「生きる、ということが平凡ではない、ということを知ると、
幸せの概念が変わってくる。
それが分かると自分が生まれ変わったように楽しくなってきた。今までの自分は、つまらないことも多かったなーと思う。」
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優花、心臓と肺高血圧の検査結果出ました。もう、入院とはオサラバよ！という気持ちでいたのですが、そういう訳にもいかず、グレーゾーン継続で経過観察。主治医たちは、万々歳の結果だと言いますが(笑)
その診断書に、新生児仮死で生まれた、と書いてあり、え？そうなの？と今さら驚きました。確かに仮死っちゃー仮死か。
新生児科の主治医に、産まれたとき産声をあげれなかったら、脳に障害を持つ可能性があるって本で読んだんだけど、優花はどうですか？と最近聞いたら、
それはない、大丈夫、僕が取り上げたんだから。と、頼もしい言葉。
ま、取り上げたのは別の産婦人科医二人で、新生児科は、すぐに受け取って、人工呼吸機をつけたということですが。
優花はそういう風に生まれてきたので入院が長く、信濃町の大学病院では、私が知らない先生からも、産まれたときから診てます！と言われることが多く、有り難い。
発達が遅い子供を育てるのは、一般的に大変という印象だけど、スーパーポジティブな私の感想は、
いつまでも赤ちゃんでいてくれて、可愛くて、逆に自慢(笑)
だけど、身近な人にも障害が深いことは、可哀想だ、と言う考えがある。
私は、その一般的な言葉の意味を分かりつつも、もう全く可哀想だと思わなくなった。
例えば、テレビで、一卵性の双子が、上半身がくっついて下半身は一人ぶんの人がいるそうな。
誤解をうむかもしれないけど、あえて言うと、
けっこうそれは、楽しいかもしれないと思った。
ただ、切断して足を片方ずつにしなかったことの理由や、どちらかの命を犠牲にする選択をしなかったことや、１つしかない臓器を２つの心臓で動かすという医学的な側面を思いめぐらすと、単純ではない。ふたりが最良の選択を選べていて、欲しいと思う。
生きる、ということが平凡ではない、ということを知ると、
幸せの概念が変わってくる。
それが分かると自分が生まれ変わったように楽しくなってきた。今までの自分は、つまらないことも多かったなーと思う。
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This is a my wife's article on Facebook on 22nd May 2016.
I moved to read it following the last article( Three Good Things about a child with Down Syndrome (My Wife's Blog)).
As a past my article（Raise a Down Syndrome Child）, I and my wife have a positive character for better or worse.
A hard situation is fortunate since we get some valuable things to overcome it.
I think it is true.
It is interesting or pleasure, the opposite thing of a poor. A man is more creativity as having a restriction, such a hard situation.
I really moved my heart when I saw the following phrase.
"The concept of happiness has been changed by which understanding life is not common.
My life becomes fun, I seem to be a new woman due to it.
I had been a boring woman before I had understood it."
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Yuka, we had got the result of the check, it had been examined whether she was pulmonary hypertension or not.
I was willing to say goodbye to the disease, but she keeps it as gray zone, and the medical follow-up has continued.
Although doctors said very good result 😃
She was newborn asphyxia, according to the medical certificate, "Oh, really?" I was just surprised. Certainly, she was it.
I asked a doctor recently that if a baby didn't cry when she was born, she might have a brain issue, according to a book I read. So how was Yuka?
He said "She was OK. Because I got her." It was dependable words.
It wasn't true, other two obstetrician got her and the doctor received her and put a ventilator on her.
Yuka had been in the hospital long time due to above. But it was a fortunate thing that I was often spoken someone, who said "I has taken care of her since she was born." at the hospital in Shinanomachi.
It seems to be hard to grow up a child whose progress is slower in general.
But I make a boast of her because a pretty baby time is long.
But there is a thinking is a pity thing that who has a handicap.
I never had became to think it's a pity, although I had understood it's generally meaning.
For example, according to TV, there are identical twins that their upper bodies are attached each other, and lower body is one person.
At the risk of being misunderstood, I say, it seems to be enjoyable I thought.
It is not simple, I think that the reason why they didn't separate their legs, and the medical side which was two hearts let one internal organ work.
I wish they selected the best choice.
"The concept of happiness has been changed by which understanding life is not common.
My life becomes fun, I seems to be a new woman due to it.
I had been a boring woman before I had understood it."
---------------------------------------------------------------------------------------------------------------------
妻の5/22のFacebook投稿
前回（ダウン症の良いところ（妻の日記））に続き、心が動いた。
以前の投稿（ダウン症児を育てる - Raise a Down Syndrome Child -）にも書いた通り、我々夫婦はいい意味でも悪い意味でも、楽観的でポジティブだと思う。
厳しい状況というのは、それを乗り越えたときのプラス面を考えると、とてもありがたいことだと思っていたし、それは今でも変わっていない。
可哀想とは全く逆で、むしろ楽しい、嬉しいこと。人は制限を与えられると創造的になる。
ここ（本文より抜粋）↓もグッときた。
「生きる、ということが平凡ではない、ということを知ると、
幸せの概念が変わってくる。
それが分かると自分が生まれ変わったように楽しくなってきた。今までの自分は、つまらないことも多かったなーと思う。」
---------------------------------------------------------------------------------------------------------------------
優花、心臓と肺高血圧の検査結果出ました。もう、入院とはオサラバよ！という気持ちでいたのですが、そういう訳にもいかず、グレーゾーン継続で経過観察。主治医たちは、万々歳の結果だと言いますが(笑)
その診断書に、新生児仮死で生まれた、と書いてあり、え？そうなの？と今さら驚きました。確かに仮死っちゃー仮死か。
新生児科の主治医に、産まれたとき産声をあげれなかったら、脳に障害を持つ可能性があるって本で読んだんだけど、優花はどうですか？と最近聞いたら、
それはない、大丈夫、僕が取り上げたんだから。と、頼もしい言葉。
ま、取り上げたのは別の産婦人科医二人で、新生児科は、すぐに受け取って、人工呼吸機をつけたということですが。
優花はそういう風に生まれてきたので入院が長く、信濃町の大学病院では、私が知らない先生からも、産まれたときから診てます！と言われることが多く、有り難い。
発達が遅い子供を育てるのは、一般的に大変という印象だけど、スーパーポジティブな私の感想は、
いつまでも赤ちゃんでいてくれて、可愛くて、逆に自慢(笑)
だけど、身近な人にも障害が深いことは、可哀想だ、と言う考えがある。
私は、その一般的な言葉の意味を分かりつつも、もう全く可哀想だと思わなくなった。
例えば、テレビで、一卵性の双子が、上半身がくっついて下半身は一人ぶんの人がいるそうな。
誤解をうむかもしれないけど、あえて言うと、
けっこうそれは、楽しいかもしれないと思った。
ただ、切断して足を片方ずつにしなかったことの理由や、どちらかの命を犠牲にする選択をしなかったことや、１つしかない臓器を２つの心臓で動かすという医学的な側面を思いめぐらすと、単純ではない。ふたりが最良の選択を選べていて、欲しいと思う。
生きる、ということが平凡ではない、ということを知ると、
幸せの概念が変わってくる。
それが分かると自分が生まれ変わったように楽しくなってきた。今までの自分は、つまらないことも多かったなーと思う。
---------------------------------------------------------------------------------------------------------------------
This is a my wife's article on Facebook on 22nd May 2016.
I moved to read it following the last article( Three Good Things about a child with Down Syndrome (My Wife's Blog)).
As a past my article（Raise a Down Syndrome Child）, I and my wife have a positive character for better or worse.
A hard situation is fortunate since we get some valuable things to overcome it.
I think it is true.
It is interesting or pleasure, the opposite thing of a poor. A man is more creativity as having a restriction, such a hard situation.
I really moved my heart when I saw the following phrase.
"The concept of happiness has been changed by which understanding life is not common.
My life becomes fun, I seem to be a new woman due to it.
I had been a boring woman before I had understood it."
---------------------------------------------------------------------------------------------------------------------
Yuka, we had got the result of the check, it had been examined whether she was pulmonary hypertension or not.
I was willing to say goodbye to the disease, but she keeps it as gray zone, and the medical follow-up has continued.
Although doctors said very good result 😃
She was newborn asphyxia, according to the medical certificate, "Oh, really?" I was just surprised. Certainly, she was it.
I asked a doctor recently that if a baby didn't cry when she was born, she might have a brain issue, according to a book I read. So how was Yuka?
He said "She was OK. Because I got her." It was dependable words.
It wasn't true, other two obstetrician got her and the doctor received her and put a ventilator on her.
Yuka had been in the hospital long time due to above. But it was a fortunate thing that I was often spoken someone, who said "I has taken care of her since she was born." at the hospital in Shinanomachi.
It seems to be hard to grow up a child whose progress is slower in general.
But I make a boast of her because a pretty baby time is long.
But there is a thinking is a pity thing that who has a handicap.
I never had became to think it's a pity, although I had understood it's generally meaning.
For example, according to TV, there are identical twins that their upper bodies are attached each other, and lower body is one person.
At the risk of being misunderstood, I say, it seems to be enjoyable I thought.
It is not simple, I think that the reason why they didn't separate their legs, and the medical side which was two hearts let one internal organ work.
I wish they selected the best choice.
"The concept of happiness has been changed by which understanding life is not common.
My life becomes fun, I seems to be a new woman due to it.
I had been a boring woman before I had understood it."
---------------------------------------------------------------------------------------------------------------------
